Because dementia caregiving is so stress-filled, you need all the help you can get. Whether you are new to caregiving or have been caring for someone with dementia for years, here are some dementia resources which might help you. At the bottom of this page are form(s) you might find helpful in figuring out dementia-related behavior issues. (I do not accept payment to mention any of these resources.)

Useful Websites

Websites and blogs change or disappear regularly. If you find a broken link, please let me know through my contact page.

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Advanced Directives

AARP Advanced Directive Forms:  www.aarp.org/caregiving/financial-legal/free-printable-advance-directives. They are free, state-specific advanced directive forms and instructions.

Health Care Directive for Dementia: www.dementia-directive.org

 

Area Agencies on Aging (AAA)

Association of Area Agencies on Aging: www.n4a.org

 

Adaptive Clothing

Silverts: www.silverts.com

Buck and Buck: www.buckandbuck.com

Dignity Resource Council: www.dignityrc.org. Modesty garments for bathing and toileting.

Joe and Bella: joeandbella.com

 

Adaptive Cushions

Bedsore Rescue: bedsorerescue.com. These cushions are designed to keep bedridden loved ones positioned so they won’t develop bedsores.

 

Assisted Living

Argentum: www.argentum.org. They provide information and resources on assisted living option and how to locate them.

 

Connection and Talking Aids

Timeslips: www.timeslips.org or by phone 1-800-220-1822. They provide training programs for families and professionals to speak with loved ones by reframing how we connect, reducing frustration for the caregiver and maintaining meaningful connections with your loved one.

 

Credit Monitoring Services

Equifax: www.equifax.com or by phone: 1-866-349-5191

Experian: www.experian.com or by phone: 1-800-493-1058

Innovis: www.inovis.com or by phone: 1-800-540-2505

TransUnion: www.transunion.com or by phone: 1-800-916-8800

Annual Free Credit Report: www.annualcreditreport.com

 

Do Not Call Registry

National Do Not Call Registry: www.donotcall.gov

 

Deafness and Dementia

Alzheimer’s Scotland offers information designed specifically for caregivers of members of the Deaf community, those with acquired hearing loss, those who are deaf and blind and those working with additional physical disabilities. They provide a PDF format caregiver guide in English.

Website: https://www.alzscot.org/our-work/dementia-support/information-sheets/dementia-and-deafness

 

Driving

American Occupational Therapy Association: https://myaota.aota.org/driver_search/index.aspx

Automobile Association of America’s Helping Seniors Drive Safer and Longer Program which includes professional driving assessments. For more information visit their website: https://seniordriving.aaa.com/evaluate-your-driving-ability/professional-assessment/

AARP Driver Safety Course: https://www.aarpdriversafety.org/

Alzheimer’s Association Driving and Dementia: https://www.alz.org/help-support/caregiving/safety/dementia-driving. They walk you through the driving conversation with your loved one and offers suggestions when the conversation does not go well.

They also have offer a driving contract where your loved one gives permission for you to help them to stop driving: Driving Contract.

Eldercare Locator: www.eldercare.acl.gov or by phone 800-677-1116. They can help arrange for special transportation services. This service may be limited in small towns or rural communities.

 

Down Syndrome and Dementia

Alzheimer’s Association: https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/down-syndrome

Global Down Syndrome Foundation: https://www.globaldownsyndrome.org/ or by phone 303-321-6277. Located in Denver, CO, USA. Time Zone MT (GMT-7)

National Association for Down Syndrome (NADS): https://www.nads.org/  or by phone: 630-325-9112. Located in Park Ridge, IL, USA. Time zone CT (GMT-6)

National Down Syndrome Society (NDSS): https://www.ndss.org/ or by phone 800-221-4602, for a copy of their guidebook: Aging and Down Syndrome: A Health & Well-Being Guidebook

 

Locating Adult Day Care or In-home Care

A Place for Mom: www.aplaceformom.com

Eldercare Locator: www.eldercare.acl.gov or by phone 800-677-1116

National Adult Day Services Association: www.nadsa.org

Home Instead: www.homeinstead.com or by phone 888-331-1023 (U.S. only), Rest of the World 1-402-205-8392

Visiting Angels: www.visitingangelsseniorcare.com

 

Distraction Technique Aids

Joy for All Companion Pets from Ageless Innovations, website: joyforall.com or by phone: 866-532-8531. They offer robotic cats, kittens, and puppies for those suffering from loneliness and dementia. Those with dementia may not understand the robots are not real and the “animals” make great substitute pets and creates a sense of calm and promotes happiness and play.

 

Document Preparation and Organization

AARP’s Prepare to Careguide, there is an in-depth section at the end of the guide which includes a place to list your loved one’s legal, financial and medical contacts with spaces for medications, their Medicare information, VA Benefits, which bills are due and when, passwords and a host of other things you will need to know to prepare for that next step. Website: https://www.aarp.org/content/dam/aarp/home-and-family/caregiving/2012-10/PrepareToCare-Guide-FINAL.pdf

 

Elder Abuse

National Center on Elder Abuse Hotline: https://ncea.acl.gov/Resources/State.aspx

National Adult Protective Services Association: http://www.napsa-now.org/get-help/help-in-your-area/

National Council on Child Abuse & Family Violence: https://www.preventfamilyviolence.org/

National Domestic Violence Hotline: www.thehotline.org or by phone 800-799-7233

National Long-Term Care Ombudsman Resource Center: http://theconsumervoice.org/get_help For use in nursing home or adult family homes.

 

Elder Law

Lists attorneys who are certified in elder law by state:

The National Academy of Elder Law Attorneys: https://www.naela.org/.

The National Elder Law Foundation: https://nelf.org/search/custom.asp?id=5427

Law Help: www.lawhelp.org. This organization helps those with limited income with legal advice. Their website helps locate free legal aid programs, information, and forms by state or territory.

 

Emergency Preparedness

American Red Cross: www.redcross.org

Center for Disease Control (CDC): emergency.cdc.gov

Federal Emergency Management Agency (FEMA) main website: www.fema.gov

Federal Emergency Management Agency (FEMA) emergency preparedness website: www.ready.gov

Grab and Go Backpack: www.mil.wa.gov/preparedness

Take Winter by Storm: takewinterbystorm.org (This website was created for Washington State, however, the information works for any weather related disaster.)

 

End of Life Care

Get Palliative Care: www.getpalliativecare.org/provider-directory. This site is run by the Center to Advance Palliative Care, a national organization dedicated to increasing the availability of palliative care services. They provide a listing by state.

Medicare: www.medicare.gov/hospicecompare. Medicare rates hospice agencies.

Medicare created a new website for comparing all provider types. Visit it at www.medicare.gov/care-compare

National Association for Home Care & Hospice: www.nahc.org. Consumer information on how to select a home care provider or hospice provider.

National Association of Social Workers: www.socialworkers.org. They also have a directory of licensed social workers at www.helppro.com/nasw.

National Hospice and Palliative Care Organization: www.nhpco.org or 800-646-6460

The Conversation Project: www.theconversationproject.org. This group was created to help people talk about their end-of-life care wishes.

 

Financial Management

American Association of Daily Money Managers to monitor bank accounts and credit cards website is secure.aadmm.com

Association for Financial Counseling & Planning Education: www.afcpe.org. They help locate certified counselors and coaches in your area.

 

Group Caregiving

ShareTheCare, Inc.: www.sharethecare.org. This organization provides support and guidance for group caregiving to those who are seriously ill, disabled, or have dementia.

Village to Village Network: www.vtvnetwork.org. They are an organization who helps communities start Villages. Villages are membership-based groups who respond to the needs of older people within a geographic area.

 

Health Insurance and Medication

Medlineplus: www.medlineplus.gov. This site is run by the National Institutes of Health and the United States National Library of Medicine. The website has information on over 600 health topics including the current information on A.D. and dementia. It also includes information on prescription and over-the-counter drugs and a medical encyclopedia.

The National Council on Aging: www.benefitscheckup.org. This website helps people age 55 and older locate programs that may pay for a portion or all of their prescription drug costs, healthcare, utilities and other services. Fill out the questionnaire and the site will direct you to programs in your area.

Needymeds: www.needymeds.org or by phone 800-503-6897. Needymeds finds help with the cost of medications.

State Health Insurance Assistance Program (SHIP): www.shiptacenter.org or by phone 877-839-2675. SHIP offers one-on-one counselling for people with Medicare and their families.

State Pharmaceutical Assistance Program: https://www.medicare.gov/pharmaceutical-assistance-program/state-programs.aspx.

Medicaid: www.medicaid.gov. Each state has its own Medicaid program. Go to “Resources for States” to be directed to the Medicaid website for your area.

Centers for Medicare & Medicaid Services: www.cms.gov. This website provides information connecting you to Medicare, Medicaid, and the Health Insurance Exchanges.

 

Health Care Directive for Dementia

Dementia Directive: www.dementia-directive.org

 

Health Needs Beyond Dementia

Alcoholics Anonymous: www.aa.org Provides information and treatment options for those suffering from alcohol addiction.

American Cancer Society: www.cancer.org Provides information to help people who face cancer with research, patient services, detection, treatment and education.

American Diabetes Association: www.diabetes.org Helps individuals with diabetes find information on risk, nutrition, fitness, research and resources.

American Heart Association: www. heart.org Provides information to reduce death caused by heart disease and stroke.

American Stroke Association: www.stroke.org Provides information about strokes, life after strokes and a resource library. It is a division of the American Heart Association.

Asbestos.com: www.asbestos.com/mesothelioma/ Helps individuals find local doctors, treatment centers and support groups for those suffering from mesothelioma.

Mesothelioma Guide: www.mesotheliomaguide.com Helps connect patients with doctors and treatment options. Also supplies information on services and resources.

 

Home Modifications

American Academy of Healthcare Interior Designers (AAHID): www.aahid.org

National Association of Home Builders: www.nahb.org/caps. The have an online directory of certified aging-in-place specialists who can do home modifications that make a home more accessible and safer.

ADABathroom.com: http://www.adabathroom.com/index

Canva: https://www.canva.com/colors/combinations/ Their color design wiki gives information about different color combinations when choosing contrasting colors to help your loved one navigate their living space longer.

 

Incontinence Pads

Pooch pads: www.poochpad.com. They carry machine washable pads with odor control built in.

Abena USA: www.abenausa.com. They carry moderate to heavy, breathable incontinence products.

Seni USA: www.seni-usa.com. They carry moderate to heavy, breathable incontinence products.

 

Long-Term Care Facilities

American Elder Care Research Organization: www.payingforseniorcare.com or by phone: 641-715-3900 ext. 606151#. This website helps people find ways to pay for eldercare.

Continuing Care Accreditation Commission: www.carf.org. This organizations monitors continuing care retirement communities.

Genworth Cost of Care Calculator: www.genworth.com/aging-and-you/finances/cost-of-care.html. This website calculates and compares the cost of care for in-home care, community and assisted living, and nursing home facilities.

LeadingAge: www.leadingage.org. They provide consumer information on long-term care facilities and services, and the best ways to access them.

National Clearinghouse for Long-Term Care Information: www.longtermcare.gov. This site provides information and tools

Medicare’s Nursing Home Compare: http://www.medicare.gov/nursinghomecompare/search.html or by phone 800-633-4227. Medicare created a new website for comparing all provider types. Visit it at www.medicare.gov/care-compare

Senior Planning: www.seniorplanning.org/long-term-care-medicate-eligibility/. This site lists Medicaid eligible, long-term care facilities by state.

Meal Services

Meals on Wheels Association of America: www.mealsonwheelsamerica.org or by phone 1-703-548-5558

Mom’s Meals: www.momsmeals.com or by phone 1-877-508-6667

 

Medical Alert Services

ADT Health:  www.adt.com/health or 1-800-588-0023

Bay Alarm Medical Systems : www.bayalarmmedical.com. or 1-877-522-9633

Get Safe: www.getsafe.com or 1-888-799-6255

Life Alert: lifealerthelp.com.  or 1-800-813-3104

Life Fone: www.lifefone.com. or 1-800-331-9198

Life Protect 24/7: www.lifeprotect247.com or 1-844-203-5617

Lifeline: www.lifeline.com. or 1-855-681-5351

Lively:  www.lively.com/medical-alerts.  or 1-877-263-5284

Medical Alert: www.medicalalert.com or 1-800-800-2537

Medical Guardian:  www.medicalguardian.com or 1-800-668-9200

Mobile Help: www.mobilehelp.com or 1-800-992-0616

One Call Alert Systems:  onecallmedicalalert.com. or 1-800-916-0138

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MedicalAlert.org, https://www.medicalalert.org is a consumer advocate organization that assists in finding medical alert systems and other assistive technology.

 

Medical Documents

National POLST Paradigm: www.polst.org

 

Medication Disposal Services

National Association of Boards of Pharmacy, Drug Disposal Locator: https://nabp.pharmacy/initiatives/awarxe/drug-disposal-locator/

U.S. Drug Enforcement Agency (DEA) National Drug Take Back Days: https://takebackday.dea.gov/

Walgreen Medication Disposal Locations finder: https://www.walgreens.com/storelocator/find.jsp?RxDisposal=true

 

Memory Kits and Other Activities

Always Home Connected: alwayshomeconnected.com or by phone 310-905-0053. They specialize in curating dementia-friendly activity boxes designed to provide joy, stimulations, and a sense of accomplishment to both those experience memory loss and their caregivers. They also carry specialty items like sensory and tactile toys, large piece jigsaw puzzles, board games and more.

Mirador Magazine: miradormagazine.com Mirador Magazine is an award winning, dementia-friendly publication which includes short features on nature, science, history, and the people who make the world wonderful. They also include activities, enhanced digital content, and have online versions of the magazine in Spanish.

WebJunction: https://www.webjunction.org/news/webjunction/memory-kits.html Library Based Memory Kits from from activities to famous photos and informational booklets created for this project with dementia and Alzheimer’s Disease to help remember moments from their past. Check with your local library.

 

Positive Approaches to Caregiving

Jolene Brackey: https://www.enhancedmoments.com/. She offers training videos and classes for dementia care using her enhanced moments method.

Paula Spencer Scott: https://www.survivingalz.net/. She offers online training for dementia care.

Teepa Snow: www.teepasnow.com. She offers training videos and classes for dementia care using her positive approach method.

Support Services

AARP Local Caregiver Resources Guide: www.aarp.org/caregiverresourceguides

AARP Prepare to Care Guide: https://www.aarp.org/content/dam/aarp/home-and-family/caregiving/2012-10/PrepareToCare-Guide-FINAL.pdf

Administrations on Community Living (ACL): www.acl.gov. It is the federal agency responsible for advancing the interests of older people. There are an assortment of tools and information for older adults and family caregivers.

Advocate for Mom and Dad: advocateformomanddad.com  It is a caregiving information guide on healthcare, finances, legal, family dynamics, safety plus additional resources.

African Americans Against Alzheimer’s: www.usagainstalzheimers.org/networks/african-americans It is an organization dedicated to address and eliminate Alzheimer’s Disease, including among African Americans.

African American Alzheimer’s & Wellness Association: www.africanamericanalz.org or by phone 800-489-6040. It is an organization that supports aging African Americans.

Alzheimer’s Association: www.alz.org or by phone 800-272-3900

Alzheimer’s Association Driving Contract: www.alz.org/driving

ALZ Connect is the Alzheimer’s Associations online community forum: www.alzconnected.org. This forum is for anyone who is affected by A.D. and other dementias.

Alzheimer’s Caregiver Support Online: www.alzonline.net. This site is sponsored by the University of Florida. It offers useful information for caregivers.

Alzheimer’s Foundation of America: www.alzfdn.org. They are committed to improving the quality of life for A.D. patients and their families.

Alzheimers.net: www.alzheimers.net/. It is an organization that provides resources and advice from professionals with expertise about Alzheimer’s disease and related dementias.

Alzheimer’s Speaks: alzheimersspeaks.com.  It is a Minnesota-based advocacy group and media outlet created by Lori La Bey, which shares information, personal stories, products, and tools to help with dementia care.

• Alzheimer’s Speaks Free Educational Resources: alzheimersspeaks.com/free-educational-resources
• Alzheimer’s Speaks Blog: Alzheimer’s Speaks Blog: alzheimersspeaks.wordpress.com
• Alzheimer’s Speaks Radio: https://alzheimersspeaks.com/alzheimers-speaks-radio/ 

Association for Frontotemporal Degeneration (FTD): www.theaftd.org. They provide support for those caring for persons with FTD.

Care.com: www.care.com. They have services to connect families with caregivers.

Caregiver Action Network: www.caregiveraction.org or by phone 202-454-3970. They provide information and support for the family caregivers.

Caring.com: www.caring.com or by phone 1-800-973-1540. They provide services to help families find assisted living and memory care.

Careinginfo: www.caringinfo.org. They provide support for end of life care through the national Hospice and Palliative Care Organization: www.nhpco.org/patients-and-caregivers

Daily Caring: www.dailycaring.com. They provide information covering daily care, caregiver stress, senior health, senior housing, finances and legal advice.

Dementia Friendly America: www.dfamerica.org/resources. They are a U.S. based clearinghouse for dementia initiatives.

Dementia Map: www.dementiamap.com. Created by Lori La Bay and Dave Wiederrich, the Dementia Map is a worldwide resource reference for Alzheimer’s and Dementia. It offers free access to education, products, services and more. There is a resource directory with many free services, event calendar, glossary of terms, and blog.

Dementia Society of America: dementiasociety.org or by phone 800-DEMENTIA (800-336-3684). They are an all-volunteer organization that provides information, resources, and a web-based locator to help caregivers find local support.

Death with Dignity: www.deathwithdignity.org

Family Caregiver Alliance: www.caregiver.org or by phone 800-445-8106

Frontemporal Disorders:

Hilarity for Charity: https://www.wearehfc.org/. Created by Lauren Miller Rogen and Seth Rogen, Hilarity for Charity offers support for caregivers, from respite support, caregiver support groups to webinars, workshops and grants for caregivers in need.

Leeza’s Care Connection: www.leezascareconnection.org. The Leeza Gibbons Memory Foundation offers resources for caregivers including information about A.D., caregiving, legal, and financial matters.

Lewy Body Dementia Association: www.lbda.org.

Memory Cafe Directory: https://www.memorycafedirectory.com/. The Memory Cafe Directory is a clearinghouse for all things dementia. They are a good source for locating support groups. They have Cafes in the USA, Australia, Brazil, Canada and United Kingdom.

National Alliance for Caregiving: www.caregiving.org. They provide support for improving the quality of life for caregivers and those they care for.

National Alliance for Hispanic Health: www.healthyamericas.org. They have the Hispanic Family Health Helpline at 866-783-2645 which supplies free and confidential health information for Hispanic families.

National Association for Home Care & Hospice: www.nahc.org. Consumer information on how to select a home care provider or hospice provider.

National Association of Social Workers: www.socialworkers.org. They also have a directory of licensed social workers at www.helppro.com/nasw.

National Domestic Violence Hotline: www.thehotline.org or by phone 800-799-7233

National Hospice and Palliative Care Organization: www.nhpco.org or 800-646-6460

National Institute on Aging Alzheimer’s Disease and Related Dementias: www.nia.nih.gov/health/alzheimers or by phone 800-438-4380

National Poison Control Center: www.poison.org or 1-800-222-1222

National Suicide Prevention Lifeline: www.suicidepreventionlifeline.org or call 988 or 1-800-273-8255, or text hello to 741741.

Parkinson’s Foundation: www.parkinson.org/# or 1-800-473-4636. They support those with Parkinson’s disease and the associated dementia.

Psychology Today: https://www.psychologytoday.com/us/therapists/grief for mental health professionals listed by state.

Rehabspot: http://www.rehabspot.com  is an organization that provides information addressing the costs of rehab for substance abuse. They are not a facility, but are paid by their adversiers’ treatment facilities if you use one of their advertisers’s services. 

SAGEUSA: www.sageusa.org/resource-category/caregiving/. An organization who provides counseling, information, support groups to gay, lesbian, bisexual and transgender caregivers.

Social Security Administration: www.ssa.gov or by phone 800-772-1213

Testing.com: www.testing.com offers explanations of medical laboratory test.

Well Spouse Association: www.wellspouse.org. They are a non-profit and have local chapters around the country who offer face-to-face and telephone support groups for spouses.

The Women’s Alzheimer’s Movement: www.thewomensalzheimersmovement.org. Founded by Maria Shriver, it covers brain health advice and stories for caregivers along with other resources.

2-1-1: www.211.org. This is a free and confidential service for people across North America to find the local resources they need.

U.S. Department of Health & Human Services: hhs.gov/aging/state-resources. List available programs and services by state.

United States Postal Service Informed Delivery: https://informeddelivery.usps.com/box/pages/intro/start.action This free services allows you to see what is arriving in the mail each day to monitor for fraudulent activities.

Vaccine Finder: vaccinefinder.org/find-vaccine This free service from the Centers for Disease Control and Prevention (CDC) helps you locate vaccine supplies, such as flu vaccines, in your area by zip code.

 

Translation Languages: English as a Second Language/Multilingual/Deaf Community

Alzheimer’s Association (U.S.):  http://www.alz.org/alzheimers_disease_4719.asp

The Alzheimer’s Association provides an interactive tour of the brain in multiple languages. Go to bottom of the page and select a language.

Languages: Arabic, Chinese, Finnish, French, German, Hindi, Italian, Japanese, Korean, Polish, Portuguese, Russian, Spanish, Vietnamese.

Alzheimer’s Association (U.S.) Spanish Portal: https://alz.org/ayuda-y-apoyo?_ga=2.1104820.46702545.1584470603-144415759.1580964892

The Alzheimer’s Association’s Spanish Portal offers a variety of articles in Spanish.

Family Caregiver Alliance (U.S.): https://www.caregiver.org/other-languages

The Family Caregiver Alliance provides a guide to Early Stage Alzheimer’s.

Languages: English, Spanish, Chinese, Korean, Vietnamese.

Alzheimer’s Society U.K.: https://www.alzheimers.org.uk/publications-about-dementia/the-dementia-guide-other-languages

The Alzheimer’s Society U.K. provides a list of factsheets and booklets.

Languages: Bengali, Gujarati, Hindi, Punjabi, Traditional Chinese, Urdu, Welsh

Alzheimer’s Association of Scotland: https://www.alzscot.org/our-work/dementia-support/information-sheets/dementia-and-deafness

The provide dementia resources for the Deaf Community.

Languages: English

DeafDOC.ORG website: deafdoc.org.

It provides health education for the Deaf and Hard of Hearing Community, Interpreters, and Healthcare professionals.

Languages: English and American Sign Language

Dementia Australia: https://www.dementia.org.au/languages

Dementia Australia provides dementia resources in many languages.

Languages: Arabic, Armenian, Assyrian, Chinese, Croatian, Dari, Dutch, Finnish, French, German, Greek, Hindi, Hungarian, Indonesian, Italian, Japanese, Khmer, Korean, Laotian, Latvian, Lithuanian, Macedonian, Maltese, Nepali, Polish, Portuguese, Punjabi, Romanian, Russian, Serbian, Spanish, Tagalog, Tamil, Thai, Turkish, Ukrainian, Vietnamese.

Latino Alzheimer’s and Memory Disorders Alliance: http://www.latinoalzheimersalliance.org/

The Latino Alzheimer’s and Memory Disorders Alliance provides education and support programs in the Latino communities of Illinois and creates awareness.

Languages: English, Spanish

Agency for Healthcare Research and Quality: http://www.ahrq.gov/health-care-information/informacion-en-espanol/index.html

The Agency for Healthcare Research and Quality’s Spanish language resources provide translated guides on many topics.

Language: Spanish

FamilyDoctor.org: http://familydoctor.org/familydoctor/es.html

FamilyDoctor.org provides family doctor pamphlets in Spanish.

Language: Spanish

Healthfinder: http://www.healthfinder.gov/espanol/

Part of the U.S. Department of Health and Human Services,  Healthfinder offers translated Spanish language resources on various conditions.

Language: Spanish

The National Network of Libraries of Medicine: https://nnlm.gov/consumer-health-information-many-languages-resources

Multilingual Health Information (encompasses all health issues, not just dementia).

Languages: Arabic, Cambodian/Khmer, Chinese, French, German, Hmong, Korean, Laotian, Russian, Spanish, Thai, Vietnamese.

Health Information Translations: https://www.healthinfotranslations.org/

Health Information Translations provides health resources and information for health care professionals or others seeking material in communities with limited understanding of the English language. This website is provided by the four health systems in Central Ohio (The Ohio State University Wexner Medical Center, Mount Carmel Health System, OhioHealth and Nationwide Children’s Hospital).

Languages: American Sign Language, Amharic, Arabic, Bosnian, Chinese Simplified, Chinese Traditional, English, French, Hindi, Japanese, Khmer, Korean, Marshallese, Nepali, Portuguese, Russian, Somali, Spanish, Swahili, Tagalog, Tigrinya, Ukrainian, Vietnamese.

Health Translations Online Directory (Australia):  http://www.healthtranslations.vic.gov.au/  

The Health Translations Online Directory allows health care professionals and others working in diverse communities find easily accessible translated health information. Based in Victoria, Australia, the directory provides direct links to information from Victoria, Australia, and other countries and regions as well. Information has been translated by an accredited translator and published within the last five years.

Languages: Afrikaans, Akan, Albanian, Amharic, Arabic, Armenian, Assyrian, Auslan, Bemba, Bengali, Bosnian, Bulgarian, Burmese, Chaldean, Chin, Chin Hakha, Chinese Simplified, Chinese Traditional, Croatian, Czech, Danish, Dari, Dinka, Dutch, English, Estonian, Faili, Farsi (Persian), Fijian, Finnish, French, German, Greek, Gujarati, Hakka, Hazaragi, Hebrew, Hindi, Hmong, Hungarian, Igbon, Indonesian, Italian, Japanese, Juba Arabic, Karen, Khmer (Cambodian), Kirundi, Korean, Krio, Kurdish, Kurmanji, Lao, Latvian, Lebanese Arabic, Lingala, Lithuanian, Macedonian, Malay, Malayalam, Maltese, Maori, Maori (Cook Islands) Mizo, Nepali, Norwegian, Nuer, Oromo, Pashto, Polish, Portuguese, Punjabi, Romanian, Russian, Samoan, Serbian, Serbian (Cyrillic), Serbian (Latin), Sinhalese, Slovak, Slovene, Somali, Sorani, Spanish, Sudanese, Sudanese Arabic, Swahili, Swahili (Congolese), Swahili (Kenyan) Swedish, Tagalog, Tamil, Telugu, Tetum, Thai, Tibetan, Tigrinya, Tok Pisin, Tongan, Turkish, Ukrainian, Urdu, Vietnamese, Yiddish, Zomi.

Lab Tests Online: https://labtestsonline.org/global-sites

Lab Tests Online uses peer-reviewed articles in plain language to help patients understand their lab tests so they can discuss them more easily with their physicians.

Languages: English, Spanish, Italian, French, Greek, Turkish, Czech, Hungarian, Polish, Portuguese, Chinese, Korean

National Library of Medicine: http://www.nlm.nih.gov/medlineplus/languages/languages.html

Information for patients and health care professionals from the National Library of Medicine’s consumer health website.

Languages: Arabic, Amharic, ASL, Bengali, Bosnian, Burmese, Chamorro, Chinese Simplified, Chinese Traditional, Chuukese, Croatian, Farsi, French, German, Gujarathi, Haitian Creole, Hindi, Hmong, Ilocano, Italian, Japanese, Karen, Khmer, Kirundi, Korean, Kurdish, Laotian, Marshallese, Nepali, Oromo, Polish, Portuguese, Punjabi, Romanian, Russian, Samoan, Somali, Spanish, Swahili, Tagalog, Thai, Tigrinya, Tongan, Turkish, Ukrainian, Urdu and Vietnamese.

MedlinePlus’ Arabic Guides: http://www.nlm.nih.gov/medlineplus/languages/arabic.html

MedlinePlus’ Arabic guides include information for patients and their loved ones and is produced the National Library of Medicine.

Languages: Arabic

HealthReach, Health Information in Many Languages: https://healthreach.nlm.nih.gov/#

HealthReach is a database that provides multilingual, multicultural health information and patient education materials about health conditions and wellness topics.

Languages: Albanian, Amharic, Arabic, Armenian, Bengali, Bosnian, Burmese, Cape Verdean Creole, Chinese Simplified, Chinese Traditional, Chuukese, Dzongkha (Bhutanese), English, Farsi, French, German, Gujarati, Haitian Creole, Hakha Chin, Hindi, Hmong, Ilocano, Indonesian, Italian, Japanese, Karen, Karenni, Khmer, Kinyarwanda, Kirundi, Korean, Kurdish, Lao, Levantine (Arabic dialect), Malay, Marshallese, Modern Standard Arabic, Nepali, Oromo, Pashto, Pohnpeian, Polish, Portuguese, Punjabi, Russian, Samoan, Serbo-Croatian, Somali, Spanish, Sudanese (Arabic dialect), Swahili, Tagalog, Thai, Tibetan, Tigrinya, Tongan, Turkish, Ukrainian, Urdu, Vietnamese, Yiddish.

SAGEUSA: www.sageusa.org.

An organization who provides counseling, information, support groups to gay, lesbian, bisexual and transgender caregivers.

Languages: English and Spanish

University of Washington, Harborview Medical Center Ethnomed: https://ethnomed.org/about/interpreter-services/

They use interpreters skilled in speaking in over 80 different dialects and languages someone has been hospitalized.

 

Military Support Services

Elizabeth Dole Foundations: www.elizabethdolefoundation.org

Memory Care Resources for Veterans: www.memorycare.com/veterans. This sight explains the stages of dementia, and gives resources and guidance for applying for VA benefits.

The Mesothelioma Veterans Center: www.mesotheliomaveterans.org/veterans/va-benefits/caregiver-benefits/ They provide educational resources, support, and information to veterans, their caregivers, and their loved ones.

Veterans Affairs: www.caregiver.va.gov or by phone 855-260-3274. They provide support and services for families caring for veterans. They connect caregivers with local support programs.

Veterans Benefits: www.benefits.va.gov/pension/aid_attendance_housebound.asp. This site provide Aid and Attendance benefits and Housebound allowance.

We Honor Veterans: www.wehonorveterans.org is a program of the National Hospice and Palliative Care Organization. They help hospice and community organizations meet the unique needs of America’s Veterans and their families.

Yellow Ribbon Network: www.yellowribbonnetwork.org/covid-19. The Yellow Ribbon Network helps U.S. Military, Veterans, and their families with financial planning. They provide certified counseling in financial management.

Respite Organizations

ARCH National Respite Network: www.archrespite.org. It is an organization that helps locate respite services.

Training Videos for Caregivers

UCLA Alzheimer’s and Dementia Care Video series: www.uclahealth.org/dementia/caregiver-education-videos. This video series was created to give caregivers ideas for how to handle specific dementia behaviors, using short videos with actors to illustrate the do’s and don’ts of dementia care before you experience the behavior.

Unclaimed Money or Property

The United States Government: www.usa.gov/unclaimed-money. This website has links to all 50 state so you can search for unclaimed money or property.

 

Wandering

Alerta: www.alertafamily.com. Alerta supplies a GPS patch that is put on like a medication patch  for those who can’t or won’t wear a bracelet or other tracking devices.

MedicAlert Foundation and the Alzheimer’s Association: www.medicalert.org/alzheimers-dementia  Phone 1-800-432-5378 or to donate to the Alzheimer’s Association, 30 percent of a new membership (no additional cost to you) is donated via this link: https://www.medicalert.org/alz

Alzheimer’s Association Safe Return: www.alz.org/help-support/caregiving/safety/medicalert-with-24-7-wandering-support this site ensures automatic donation. This is the same program as above but through the Alzheimer’s Association website portal.

SafetyNet Tracking Systems by LoJack: safetynettracking.com/ or phone 1-877-434-6384 Uses RFID or GPS

SmartSole: www.gpssmartsole.com or phone 1-213-489-3019. GSP SmartSole is a GPS tracker hidden and sealed within a water-resistant shoe insert.

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Useful Forms

Select the form you would like to download.

The Meltdown Trigger List

Dementia Home Care Supplement: Sample Caregiving Guide for Family and Friends. This supplement is a sample to help you create a caregiving guide for your family members who are not the primary caregiver. (1.6M | PDF)